Aiden’s experiences with Sandhoff, and resources for families with as many questions as we had.
365 days. One whole year since the world stopped spinning. Normal crumbled. Our lives split…
It’s been a while since we’ve written a post. I just wanted to express our…
Today, Aiden would have turned two years old. A heavy day for Mama and I.…
It took a little bit of time to get set up, but you can now…