The Story
Aiden’s experiences with Sandhoff, and resources for families with as many questions as we had.
-
Carnival of Hope
Our friends, family, and community have come together to organize a fundraising carnival for Aiden.…
-
Calming the seizures
The day after Aiden was diagnosed with Sandhoff, he experienced his first seizure. His seizures…
-
Assistive Furniture
Furniture we found that worked well for Aiden. His muscle tone was severely diminished, so…
-
The months before diagnosis
Aiden was born on April 28th, 2024. He came out as just a little guy…