Category: Sandhoff
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Furniture we found that worked well for Aiden. His muscle tone was severely diminished, so he needed as much head and trunk support as we could find. Chairs Wagons and Strollers Pillows
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Aiden was born on April 28th, 2024. He came out as just a little guy (6 pounds), completely healthy, and loved his naps. As our first child, and completely exhausted, Mama and I nervously loaded him into the car seat and tiptoed home on almost no sleep. The first few months were a blur. Aiden…
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“Sandhoff disease is a rare genetic disorder that destroys nerve cells in the brain and spinal cord. It usually appears in infancy, but it can occur in children and adults. Sandhoff disease is a lysosomal storage disorder. Almost every cell in the body contains lysosomes. Lysosomes have dozens of enzymes that break down and digest…